Epidermolysis Bullosa Awareness
Summary
The county proclaimed October as EB Awareness Month after an emotional appeal from Penelope Reim, whose daughter CC lives with recessive dystrophic EB — a rare disorder making skin extremely fragile. She asked residents to learn about EB and support research organizations.
At a glance
- Total mentions
- 3
- Last 30 days
- 3
Discussed at 1 meeting in the last 60 days; most recently Oct 28, 2026.
Impact analysis
No county cost; the proclamation is awareness-only.
Local families affected by EB and the rare-disease research community.
Mentions & discussions (2)
Sussex County Commissioners Recognize October as EB Awareness Month
The Sussex County Board of County Commissioners issued a proclamation recognizing October as Epidermolysis Bullosa (EB) Awareness Month during its regular meeting on October 28, 2026.
Board of County Commissioners (Regular) - Oct 28, 2026
The county proclaimed October as EB Awareness Month after an emotional appeal from Penelope Reim, whose daughter CC lives with recessive dystrophic EB — a rare disorder making skin extremely fragile. She asked residents to learn about EB and support research organizations.
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